What is NeuroResponse?

Why was NeuroResponse developed?

What does NeuroResponse provide?

What does NeuroResponse provide?

Who can access NeuroResponse?

What is NeuroResponse?

NeuroResponse is a new service for people living with long term neurological conditions, to help improve management of the condition and improve quality of life. Developed in partnership with people living with multiple sclerosis (MS), their families and health professionals, the service seeks to complement your current specialist care, to ensure you can access the right care when you need it most.

This video provides information on why and how NeuroResponse was developed and the services it provides. Please refer to the section ‘Who can access NeuroResponse?’ for details on those currently eligible to enrol.

Why was NeuroResponse developed?

We know that symptoms associated with MS and possible relapse can be a common and worrying occurrence. We also understand that when services are busy, or you need advice out of hours, it can be difficult to find.

NeuroResponse aims to:

Provide access to expert advice day and night.

Shorten waiting time for assessment of new MS symptoms.

Make urinary infection analysis and treatment faster and easier.

Create a secure system to share information.

What does NeuroResponse provide?

NeuroResponse offers expert assessment and advice at times when it matters most. We combine technology, humanity and quality to improve the lives of people living with MS.

NeuroResponse offers:

Personalised electronic care (E-care) plan and 24/7 access to specialist advice

Resources to support symptom management including home testing kits and lab courier service to speed up diagnosis and treatment

Secure data: With your consent all your information is stored safely in one place and will only be shared by people involved in your care

NeuroResponse has been designed to enable:

Earlier detection and reduced time to treat

Appropriate antibiotic use

Reduction in unplanned admissions resulting in more time at home

How was NeuroResponse developed?

We hope to improve patient care, confidence to self-manage and quality of life

NeuroResponse was co-designed with patients, their families and clinicians. Participants were asked to imagine how things would work if they lived in a place where care was not fragmented, and systems and teams joined up to provide high quality care, i.e. life in a Brilliant Borough!

Access to expert advice between visits to specialist teams, during out of hours or at weekends was highlighted as an area of concern in a number of independent audits carried out by MS charities and others over the years.1,2,3 Our research has shown that unplanned hospital admissions were common in MS patients and UTIs were a leading cause.4, 5

It was recognised that a number of these problems can be addressed without the need for hospital admission if patients are provided with the right treatment in a timely manner.

By providing patients with the advice and resources that NeuroResponse offers, we hope to improve patient care, confidence to self-manage and quality of life.

Who can access NeuroResponse?

Following a successful trial of the service in a small group of people living with MS in Camden, London, NeuroResponse is commencing Phase One of its expansion to people living with MS in North London.

Those eligible for NeuroResponse will be contacted by our team. The outcomes of Phase One will be assessed to shape future phases of expansion across the UK.

NeuroResponse is available to everyone living with MS in Barnet, London except for those who are excluded by their GP. Sometimes people with MS develop other serious health conditions and this makes their care management complex. In these situations the GP may decide that the person should not enrol on NeuroResponse as they often need health advice which relates to more than their MS.


References:

1. MS Society. MS treatment in England: is access still a lottery? July 2016. Available from: https://bit.ly/2KVe7D. Accessed May 2018.

2. Royal College of Physicians. National audit of services for people with multiple sclerosis. September 2011. Available from: https://bit.ly/2IAKCIY. Accessed: May 2018.

3. National Audit Office. Services for people with neurological conditions. December 2011. Available from: https://bit.ly/2KcN997. Accessed: May 2018.

4. NeuroResponse data on file. 2014.

5. Data sourced from Vantage, by Health iQ. Secondary care data is taken from the English Hospital Episodes Statistics (HES) database produced by the Health and Social Care Information Centre (NHS Digital, http://content.digital.nhs.uk/hes). Copyright 2017. See http://www.healthiq.co.uk/information-governance for further information.